Human rights activists secured the provision of medication to disabled brothers from Dagestan.

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Two disabled brothers from Dagestan, suffering from spinal muscular atrophy, were only able to obtain an expensive medication after contacting lawyers from the human rights project "Patient Monitor and Housing and Utilities."

On March 13, the human rights project "Patient Monitor and Housing and Utilities" reported on the situation of two brothers from Dagestan.

The brothers are disabled, suffering from a rare genetic disorder – spinal muscular atrophy type III, also known as Kugelberg-Welander disease. "Federal specialists from the Scientific Center of Neurology prescribed the brothers therapy with Risdiplam. It must be taken daily. For people with this diagnosis, this is a chance to stop the progression of the disease," the project reported in a post on its Telegram channel.

The brothers are registered with the Gunib Central District Hospital; they applied for subsidized prescriptions there, but they were not given any. It was also noted that one package of the medication costs 580,000 rubles—"for an average family, this is an amount from another reality."

The brothers contacted the Patient Monitor and Housing and Utilities Department, which sent appeals to the prosecutor's office, Roszdravnadzor, the insurance company, and the clinic. Human rights activists cited the fact that, in accordance with Government Resolution No. 890 of July 30, 1994, “On State Support for Industrial Development and Improving the Provision of the Population and Healthcare Institutions with Medicines and Medical Products,” disabled persons of groups 1 and 2 must receive all medicines free of charge. After this, the brothers were given 12 packages of Risdiplam worth almost seven million rubles.

"The most telling thing about this story isn't even the amount. It's the fact that the medication arrived not after years of waiting, but after several official requests," the report notes.

Human rights activists also noted that "sometimes the difference between 'no medication' and 'everything was given out' is just one complaint."

Previously, "Caucasian Knot" reported that a special military operation (SVO) veteran from the Kizilyurt district had previously complained that the Kizilyurt Central District Hospital was denying him medication. However, after journalists and human rights activists drew attention to his situation, Abdurazakov was offered additional assistance, including psychological support, and promised to provide him with medication.